Although me and Punny are switching sleeping duties with Supatra every other night we are both getting very tired. It is becoming harder and harder to wake up in the morning in time to do the IV bag changes. Everyone just wants to get home. We want our bigger house, Supatra wants to go to school, see her friends, and be there for Halloween and Jason...well he just misses his toys and the room to run around.
I still can't believe that we are going through all this and that Supatra's recovery is not a given. Considering its been almost six months if not longer since her symptoms progressed to the point where she is at now and it almost seems normal now while at the same time each day I look at Supatra hoping to see some positive change; a little movement at the left side of her mouth or her left eye lid moving at the same time as her right. Its the reversing of her left facial palsy symptoms that will make Supatra so happy and would confirm to us that the antineoplastons are working. I said to Punny the other day that I thought Supatra was walking a little better i.e. not with such a dramatically wide gait but more normal. I don't know if it is just wishful thinking on my part or if there actually has been a change. I just pray everyday that Supatra will be one of those few that actually recovers from this tumour, that her life will be full of joy and that she will be able to flash that cute smile of hers at me once again.